Options worth considering....
Patrice is an integrative Oncology nutritionist, a herbalist and a real expert in Glioblastoma. She’s a great point of reference regarding treatments available internationally and she’s amazing regarding supplements. We send her blood reports and scans and Skype with her. She’s based in Texas and can be found through Facebook. She’s an absolute gem.
Professor Van Gool is our consultant at IOZK and we’ve now been going out there for a week roughly every month/6 weeks for 17 months, 13 of those have just been the standard electro-hyperthermia & Newcastle disease virus and 4 trips have also included the dendritic cell vaccinations. This is still pretty expensive, but the GoFundMe fund-raising has made this possible.
As well as the dendritic cell vaccinations we have also had tumour analysis done at CeGat, they then designed 2 neo-peptide vaccinations which were then made and administered at IOZK
We go out to Germany for 5 days every 6 weeks and Laura has an hour of treatment every day. It doesn’t have any significant side effects, and the only real discomfort is the amount of blood taken on the first day. Laura lies on a water bed and radio waves are applied to the area of her brain where the tumour was, the NDV is just a simple injection
Some helpful reading
Ben Williams’ fantastic book ‘Beating Terminal Cancer’ is the bible for anyone diagnosed with Glioblastoma. Ben is a 20+ year survivor and he talks a great deal of sense.
Jane McLlelland ‘How to starve cancer’ is also great, it’s not about food as such but how to block the pathways and stop cancer cells from reproducing.
Adam Blain ‘Pear Shaped’ and “Grin and Pear it’ are both really entertaining accounts of a Glioblastoma diagnosis (if that doesn’t sound too inappropriate!)
Tips for travelling to Germany
At the moment, the first thing you need to do is contact the consulate to ensure that you will be permitted to enter the country. This is the contact details for North Rhine Westphalia region which includes Cologne :
Consular Team Germany
British Consulate General | Willi-Becker Allee 10 | 40227 | Düsseldorf | Germany
Tel: +49 (0)211 9448 0 | Fax: +49 (0)211 9448 235 | firstname.lastname@example.org
When travelling by air, it’s worth getting hold of a sunflower lanyard to make it easier and faster to get through security etc at the airport. You can get them online or from the assistance desk at the airport.
Google translate is an App that’s available on most phones and the camera option is really handy. Hold it up to a sign (or take a photo) and it will translate from German into English
If your flight arrives in Dusseldorf, it’s not too difficult to get to Cologne. Just follow signs for the free Skytrain which connects you to the main airport train station (Flughafen Bahnhof) take the train to the main Cologne station (Koln Hbf) and a taxi to the clinic is roughly €20.
There are lots of great Air B&B apartments in the vicinity of the clinic, if you use Zulpicher Strasse station as your central search point you should get plenty of options.
There’s a great supermarket opposite the clinic called REWE, it also has an online delivery option if you’re feeling brave (or comfortable with google translate!) the delivery slots become available a couple of days in advance so if you fill your ‘trolley’ just keep checking back for delivery slots. Ours came via bike!
You can also recycle any glass or plastic bottles at the front of the shop and you’re given a voucher off your shopping too.
Cologne has an amazing selection of restaurants, Viet Village on Hohensaufenring is our favourite but it’s definitely worth downloading the Lieferando App which is the German equivalent of Just Eat. Not everywhere takes card payment so it's still a good idea to carry some euros.
Travelling back to Dusseldorf airport, you can book in advance using the Trainline App and it’s worth doing if you’re travelling at peak times, the station to get off at is Dusseldorf Flughafen, then the Skytrain back to the airport.